8.30-9.30 Registration and breakfast – Gallerigången
9.30-10.40
Joint session
Moderator: Maria Nilsson, Scientific Research Council
Auditorium Olympus
9.30 Welcome
9.40 From Swedeheart to Euroheart – Lars Wallentin, Uppsala
10.20 Register-based research on contextual effects – Maria Brandén Linköping University
10.40-11.10
Coffee break
11.10-12.10
Parallel sessions
Auditorium Olympus
11.10 Conversation about the steps and challenges during the process of identifying, requesting and using register data. Panel of register holders, legal expert and ethical review authorities
Per Bergstrand – Lawyer, Scientific Research Council
Adina Feldman – Researcher, Karolinska Institutet
Jonas Färnstrand – Adviser, Statistics Sweden
Sara Hansson – Director, Uppsala Clinical Research Center
Johan Modin – Director, Swedish Ethical Review Authority
Elin Stenfeldt – National Sample Service Coordinator at Biobank West
Clare Levine – Processor, the Swedish National Board of Health and Welfare
Moderator: Petra Hasselqvist, The Swedish Association of Local Authorities and Regions
Trippelpanorama
11.10 Introduktion - Petra Hasselqvist, SKR
11:15 Översikt statliga utredningar och uppdrag inom digitaliseringssektorn - Helén Lundkvist Nymansson, The Swedish Association of Local Authorities and Regions
11.25 EHDS – förberedelser och pågående aktiviteter - Maria Bäcklund Hassel and Derya Akcan, Swedish eHealth Agency
11.35 Digitalisering av biobanksprocessen - Hanna Fransson and Peter Hedman, Biobank Sverige
11.45 Juridiska utmaningar inom digitalisering– Manólis Nymark, The Swedish Association of Local Authorities and Regions
11.55 Avslutande diskussion och frågestund
12.10-13.30
Lunch
13.30-14.30
Parallel sessions
Moderator: Sumithra Velupillai; Scientific Research Council
Auditorium Olympus
13.30 Cell Key Method (CKM) for disclosure control of register-based frequency tables - Mats Bergdahl-Kercoff, Statistics Sweden
13.50 What is synthetic data, and why is it well-suited for data sharing and secondary data usage? - Mattias Ripoll, SynData
14.10 SARDIN – EHDS compliant National Data Space for researchers & innovators - Joakim Börjesson and Peter Söderman, RISE
Moderator: Anna Gref och Cecilia Fararos, National board of Health and Welfare
Trippelpanorama
13.30 Hur ett register blir till: Dödsorsaksregistret - Jeroen de Munter och Eva Strand, the National board of Health and Welfare
13.50 Att använda äldre ansökningsdata i forskning om utbildning - Adam Altmejd Selder, Stockholms University
14.00 Att använda folkräkningsdata samt digitaliserad historisk val- och utbildningsdata från Riksarkivet – Monir Bounadi, Stockholms universitet
14.10 Nationella Kvalitetsregister - Anna Trinks, SKR
14.30-15.00
Coffee break
15.00-16.15
Joint session
Moderator: Sumithra Velupillai and Maria Nilsson, Scientific Research Council
Auditorium Olympus
15.00 Indirect costs of gun violence – using register data to map neighbourhood consequences – Oscar Erixson, Uppsala University
15.45 Summary and closing