Programme

8.30-9.30 Registration and breakfast – Gallerigången

9.30-10.40
Joint session
 

WELCOME AND INTRODUCTION

Moderator: Maria Nilsson, Scientific Research Council
Auditorium Olympus

9.30 Welcome
9.40 From Swedeheart to Euroheart – Lars Wallentin, Uppsala 
10.20 Register-based research on contextual effects – Maria Brandén Linköping University

10.40-11.10
Coffee break

11.10-12.10
Parallel sessions

DATA ACCESS – PANEL DISCUSSION

Auditorium Olympus

11.10 Conversation about the steps and challenges during the process of identifying, requesting and using register data. Panel of register holders, legal expert and ethical review authorities
Per Bergstrand – Lawyer, Scientific Research Council
Adina Feldman – Researcher, Karolinska Institutet
Jonas Färnstrand – Adviser, Statistics Sweden
Sara Hansson – Director, Uppsala Clinical Research Center
Johan Modin – Director, Swedish Ethical Review Authority
Elin Stenfeldt – National Sample Service Coordinator at Biobank West
Clare Levine – Processor, the Swedish National Board of Health and Welfare

 
PÅ GÅNG INOM DIGITALISERING (IN SWEDISH)

Moderator: Petra Hasselqvist, The Swedish Association of Local Authorities and Regions
Trippelpanorama

11.10 Introduktion - Petra Hasselqvist, SKR
11:15 Översikt statliga utredningar och uppdrag inom digitaliseringssektorn - Helén Lundkvist Nymansson, The Swedish Association of Local Authorities and Regions
11.25 EHDS – förberedelser och pågående aktiviteter - Maria Bäcklund Hassel and Derya Akcan, Swedish eHealth Agency
11.35 Digitalisering av biobanksprocessen - Hanna Fransson and Peter Hedman, Biobank Sverige
11.45 Juridiska utmaningar inom digitalisering– Manólis Nymark, The Swedish Association of Local Authorities and Regions
11.55 Avslutande diskussion och frågestund

12.10-13.30
Lunch

13.30-14.30
Parallel sessions

 
INTEGRITY AND METHODS FOR DATA SHARING 

Moderator: Sumithra Velupillai; Scientific Research Council
Auditorium Olympus

13.30 Cell Key Method (CKM) for disclosure control of register-based frequency tables - Mats Bergdahl-Kercoff, Statistics Sweden
13.50 What is synthetic data, and why is it well-suited for data sharing and secondary data usage? - Mattias Ripoll, SynData
14.10 SARDIN – EHDS compliant National Data Space for researchers & innovators - Joakim Börjesson and Peter Söderman, RISE

 
OM REGISTER - FRÅN TILLKOMST TILL ÅTKOMST (IN SWEDISH)

Moderator: Anna Gref och Cecilia Fararos, National board of Health and Welfare 
Trippelpanorama

13.30 Hur ett register blir till: Dödsorsaksregistret - Jeroen de Munter och Eva Strand, the National board of Health and Welfare 
13.50 Att använda äldre ansökningsdata i forskning om utbildning - Adam Altmejd Selder, Stockholms University
14.00 Att använda folkräkningsdata samt digitaliserad historisk val- och utbildningsdata från Riksarkivet – Monir Bounadi, Stockholms universitet
14.10 Nationella Kvalitetsregister - Anna Trinks, SKR


14.30-15.00
Coffee break

15.00-16.15
Joint session

KEYNOTE SPEAKER AND CLOSING REMARKS

Moderator: Sumithra Velupillai and Maria Nilsson, Scientific Research Council
Auditorium Olympus

15.00 Indirect costs of gun violence – using register data to map neighbourhood consequences – Oscar Erixson, Uppsala University
15.45 Summary and closing